Post by Mippi on Jan 12, 2017 12:17:02 GMT
Hi there!
I just discovered this page and want to present my life with this sickness and see what your reactions are and maybe get some advice.
I was born in 1977, instantly fell asleep and slept alot (abnormaly much) throughout my childhood, (same thing in the womb, my mother said, I usually slept, was active a few hours and then slept alot again) teens and then adult life. School didnt work, neither did classes, work or any form of daily activity for more than a month, then I'd be back in bed, sleeping all day and night, like I'd been through a war, needing recovery. I became bullied at school since I was hardly ever there (maybe twice a week) and never really got into the friendship with the others. The bullying went on until I was 14 and had to be taken out of school and was homeschooled. It felt ALOT better to get out of there but I still didn't "get" the lessons, things just wouldnt stick due to concentration, memory problems and the extreme tiredness.
I've had depression since I was a child but it only came out in late night crying attacks and nothing during the day. In my teens that changed and I had full blewn depression along with what I now understand was PMDD -the extreme form of PMS. (Yeah I know, lol, only thing missing, right? )
At 19 I started having panic attacks and struggled with it for as long as I could but finally had to go on serotoning tabalets, -a.k.a. antidepressants. Nothing heavy but it made a HUGE difference! The depression felt way better but I was still just as tired. The panic attacks also went away but people found me alittle "over happy" at times so..I don't know.
Today, at almost 40, I know what I have. A friend at church suspected it could be adrenal fatigue and well, having looked up every damned disease I and my friends could think of (whereas not one had matched my symptoms), I looked this up to and I'll be damned if I didnt have almost ALL of the symptoms on the list (yay?), however I wasn't convinced yet so I went on the supplements my friend recommended and waited.
After a month... Nothing, two months... Nothing. So I called my friend and told her I didnt think that was it since I hadn't become any better. She told me "No no, it takes time, hang in there!" And I did.
After 6 months on Adrekomp and Ashwagandha, I noticed all the phleghm I always had in my nose and throat went away. -Hm, oh well I thought. But then the anxiety dissapeared (Antidepressants hasn't helped all the way for many years by now but I kept taking them cause they still made a huge difference and I couldnät live without them or I'd feel so bad it was ridiculess) and hmm, weird.
Then, the brainfog lifted! I had never been able to think so CLEAR! No memory problems, no going from one side of the apartment to the other not remembering what I was going to get, my memory worked perfect! And then...
The depression became a milder more everyday for of depression, something I could actually live with, then it dissapeared COMPLETELY! I was ..HAPPY, for the first time in my life, really really HAPPY! I even caught myself thinking life was great and I had been an "emo" all my life so I thought: -WHAT the heck was I thinking? I like life? What is this? Dude, I dress in black and want to die, what's going on here?
Then, the most amazing thing yet, happened; the fatigue lifted! I wasn't tired anymore, I woke up at 8 in the morning, went to a daytimes activity place until around 4, then to the gym and then did other fun things, I came home at around half past ten at night, was in bed by eleven and slept perfectly all night with no sleep interruptions until 8 the next day. PMDD? NONE! My gyneclogist said -Amazing! When she heard it had dissapeared since she told me it was uncurable. Nu breast tenderness, no suicidal thoughts before my periods, no pain!
I was WELL! Life was AWESOME!
Then, my endocrinologist called. They discovered I had graves (overactive thyroid) when I was 35 and had treated me for it and since I still felt unwell, she thought it might be my adrenal glands and wanted to take a ACTH- test on me, (a test where you stress the adrenals and see if they produce the cortisol they're supposed to.)
I had to stop taking the supplements in order for the test to come out well, so I did. Within a week all my symptoms were back. After the test I got the worst anxiety of my LIFE. I shook all over and didn't know what to do with myself and was finally hospitalised (I had to tell them I was suicidal to get in, usually they dont hospitalise you over anxiety. I know that was a terrible thing of me to do but I had nowhereelse to go and I was so scared, I didn't want to be alone.)
The anxiety lasted for 1 year and 8 months, every day, around the clock. I had to take sleeping pills to get some rest.
Now, the anxiety has come down a big bit but it's still there lurking underneath the surface. The smallest stress, like hearing my meighbour stomp upstairs, sets it off and I start shaking and panic.
I have now been on the supplements conataining ashwaghanda, magnesium, zinc, licorice root, roodiola (spelling?), vitamin C and all that stuff you need for Adrenal fatigue since may 2014. That comes down to 1 year and 8 months.
I've read that it can take up to 3 years to get well and since I'm usually bedridden or at least very often, I'm guessing I will get better soon but it will still take some time since I guess going of the supplements and then stressing the adrenals by an ACTH -test, stressed them to the point where I became really unwell.
I also added prognanolol (Oh these names.. The hormone one adds day 16-28 in the cycle) wich has helped me stop losing my hair, I've lost half of all my hair during the years so its very thin and I have to wear weaves to look..normal.)
So, I guess my question to all of you who had the energy to read this long presentation, is, are there others who have been born with this? Since I got well I KNOW this is what I have so no worries there but haven't heard of anyone else being born with it, just that one can stress oneself to it. Am I the only one?
I have thought SO many times about why I was born with this. Sure, it could have been WAY worse, I could have been born with neither arms or legs, cancer and all of that but the anxiety and darkness this disease brings with it, is inhuman! So I often feel like I have been punished for something or that god is trying to teach me something I just haven't grasped yet because due to this illness, my parents and relatives abandoned me (didnt really do anything to them, I've always been a sweet kid, didnt have the energy for anything else, haha!) and I've met the most strange people and boyfriends, often sick themselves, maybe that comes from not working so I could get out and meet more "normal" people. I donät want this presentation to sound all "Oh bohoo, poor me" but it's really been HELL on earth.
So for you spiritual people out there, I was born a believer in God and still am, I pray usually every day although I donät know where i got it from since noone in my family or relatives believe, that I know of. Could this be some kind of herrital sin or a punishment of some sort?
I welcome your thoughts and ideas!
I just discovered this page and want to present my life with this sickness and see what your reactions are and maybe get some advice.
I was born in 1977, instantly fell asleep and slept alot (abnormaly much) throughout my childhood, (same thing in the womb, my mother said, I usually slept, was active a few hours and then slept alot again) teens and then adult life. School didnt work, neither did classes, work or any form of daily activity for more than a month, then I'd be back in bed, sleeping all day and night, like I'd been through a war, needing recovery. I became bullied at school since I was hardly ever there (maybe twice a week) and never really got into the friendship with the others. The bullying went on until I was 14 and had to be taken out of school and was homeschooled. It felt ALOT better to get out of there but I still didn't "get" the lessons, things just wouldnt stick due to concentration, memory problems and the extreme tiredness.
I've had depression since I was a child but it only came out in late night crying attacks and nothing during the day. In my teens that changed and I had full blewn depression along with what I now understand was PMDD -the extreme form of PMS. (Yeah I know, lol, only thing missing, right? )
At 19 I started having panic attacks and struggled with it for as long as I could but finally had to go on serotoning tabalets, -a.k.a. antidepressants. Nothing heavy but it made a HUGE difference! The depression felt way better but I was still just as tired. The panic attacks also went away but people found me alittle "over happy" at times so..I don't know.
Today, at almost 40, I know what I have. A friend at church suspected it could be adrenal fatigue and well, having looked up every damned disease I and my friends could think of (whereas not one had matched my symptoms), I looked this up to and I'll be damned if I didnt have almost ALL of the symptoms on the list (yay?), however I wasn't convinced yet so I went on the supplements my friend recommended and waited.
After a month... Nothing, two months... Nothing. So I called my friend and told her I didnt think that was it since I hadn't become any better. She told me "No no, it takes time, hang in there!" And I did.
After 6 months on Adrekomp and Ashwagandha, I noticed all the phleghm I always had in my nose and throat went away. -Hm, oh well I thought. But then the anxiety dissapeared (Antidepressants hasn't helped all the way for many years by now but I kept taking them cause they still made a huge difference and I couldnät live without them or I'd feel so bad it was ridiculess) and hmm, weird.
Then, the brainfog lifted! I had never been able to think so CLEAR! No memory problems, no going from one side of the apartment to the other not remembering what I was going to get, my memory worked perfect! And then...
The depression became a milder more everyday for of depression, something I could actually live with, then it dissapeared COMPLETELY! I was ..HAPPY, for the first time in my life, really really HAPPY! I even caught myself thinking life was great and I had been an "emo" all my life so I thought: -WHAT the heck was I thinking? I like life? What is this? Dude, I dress in black and want to die, what's going on here?
Then, the most amazing thing yet, happened; the fatigue lifted! I wasn't tired anymore, I woke up at 8 in the morning, went to a daytimes activity place until around 4, then to the gym and then did other fun things, I came home at around half past ten at night, was in bed by eleven and slept perfectly all night with no sleep interruptions until 8 the next day. PMDD? NONE! My gyneclogist said -Amazing! When she heard it had dissapeared since she told me it was uncurable. Nu breast tenderness, no suicidal thoughts before my periods, no pain!
I was WELL! Life was AWESOME!
Then, my endocrinologist called. They discovered I had graves (overactive thyroid) when I was 35 and had treated me for it and since I still felt unwell, she thought it might be my adrenal glands and wanted to take a ACTH- test on me, (a test where you stress the adrenals and see if they produce the cortisol they're supposed to.)
I had to stop taking the supplements in order for the test to come out well, so I did. Within a week all my symptoms were back. After the test I got the worst anxiety of my LIFE. I shook all over and didn't know what to do with myself and was finally hospitalised (I had to tell them I was suicidal to get in, usually they dont hospitalise you over anxiety. I know that was a terrible thing of me to do but I had nowhereelse to go and I was so scared, I didn't want to be alone.)
The anxiety lasted for 1 year and 8 months, every day, around the clock. I had to take sleeping pills to get some rest.
Now, the anxiety has come down a big bit but it's still there lurking underneath the surface. The smallest stress, like hearing my meighbour stomp upstairs, sets it off and I start shaking and panic.
I have now been on the supplements conataining ashwaghanda, magnesium, zinc, licorice root, roodiola (spelling?), vitamin C and all that stuff you need for Adrenal fatigue since may 2014. That comes down to 1 year and 8 months.
I've read that it can take up to 3 years to get well and since I'm usually bedridden or at least very often, I'm guessing I will get better soon but it will still take some time since I guess going of the supplements and then stressing the adrenals by an ACTH -test, stressed them to the point where I became really unwell.
I also added prognanolol (Oh these names.. The hormone one adds day 16-28 in the cycle) wich has helped me stop losing my hair, I've lost half of all my hair during the years so its very thin and I have to wear weaves to look..normal.)
So, I guess my question to all of you who had the energy to read this long presentation, is, are there others who have been born with this? Since I got well I KNOW this is what I have so no worries there but haven't heard of anyone else being born with it, just that one can stress oneself to it. Am I the only one?
I have thought SO many times about why I was born with this. Sure, it could have been WAY worse, I could have been born with neither arms or legs, cancer and all of that but the anxiety and darkness this disease brings with it, is inhuman! So I often feel like I have been punished for something or that god is trying to teach me something I just haven't grasped yet because due to this illness, my parents and relatives abandoned me (didnt really do anything to them, I've always been a sweet kid, didnt have the energy for anything else, haha!) and I've met the most strange people and boyfriends, often sick themselves, maybe that comes from not working so I could get out and meet more "normal" people. I donät want this presentation to sound all "Oh bohoo, poor me" but it's really been HELL on earth.
So for you spiritual people out there, I was born a believer in God and still am, I pray usually every day although I donät know where i got it from since noone in my family or relatives believe, that I know of. Could this be some kind of herrital sin or a punishment of some sort?
I welcome your thoughts and ideas!